A 15-month-old from central Florida is redefining what is feasible for individuals born with spina bifida.
Ava Lynn Grace Reyes is a toddler that medical doctors take into account a "double birth". His face was on billboards throughout the nation for the 2019 World Spina Bifida Day.
Her mother and father, Erika and Jorge Reyes, have lived via 5 years of grief and hardship in creating their households. After a miscarriage and two ectopic pregnancies, the couple turned to in vitro fertilization and was delighted to be taught that they have been anticipating a child.
Reyes stated she was not identified till she was 23 weeks outdated.
"She went to get the doctor and she came in very frankly," stated Reyes. She was like, "let me have a look at the scans," and he or she stated, you realize, one thing is unsuitable with your child. "
Ava's backbone didn’t shut, which triggered fluid build-up. According to medical doctors on the Winnie Palmer Hospital, about four out of 10,000 babies are born within the United States, myelomeningocele, often known as spina bifida. Doctors warned of great dangers, together with paralysis, respiratory issues and cognitive delays.
After intensive testing, Reyes certified for a brand new experimental fetal surgery at Winnie Palmer Hospital to open her uterus and shut the defect on her child's backbone whereas she was nonetheless within the womb .
Pediatric neurosurgeon, Dr. Samer Elbabaa carried out fetal surgery greater than 70 occasions and operated on Reyes and her child. Reyes' water failed one week after surgery at 27 weeks, necessitating an emergency caesarean part and 87 days within the neonatal intensive care unit.
"As quickly as she got here out, she was wriggling her ft," said Jorge Reyes. "This was the very first thing we have been instructed that she wouldn’t do."
After graduating from the NICU, Ava continued to problem the chances, crawling, standing, hoping to stroll alone 18 months from now.
"I are not looking for anybody to take a look at her as if she have been totally different, I imply she's only a regular child," Jorge Reyes stated.
Fetal surgery isn’t a remedy for spina bifida, however the Reyes stated their daughter was dwelling proof that she might change the standard of lifetime of different babies identified early.
"We have been very fortunate that all the things is occurring as with Ava," stated Erika Reyes.